10 Chronic Illness Influencers Sharing Their Experiences

More people are living with chronic illness than you might think. Chronic illness can be defined as symptoms or diseases that last for three months or longer. More than 40 million adults in the U.S. alone are living with chronic health conditions that limit their day-to-day life, according to the National Health Council. Thankfully social media has given the space for many chronic illness influencers and advocates to make a voice for themselves and create a community for others living similarly. While no chronic illness symptoms are precisely the same, finding comfort with others going through a similar experience can help bring hope to others out there.

Chronic illness influencers on Instagram and TikTok

Elena Krail

Elena is a chronic illness advocate and influencer on Instagram who shares her love for style while also talking about her chronic conditions. Elena has Lyme, postural orthostatic tachycardia syndrome (POTS) and chronic fatigue syndrome (CFS) which have kept her in a wheelchair for parts of her life. Elena shares on her blog her love for fashion, wellness and beauty. Her posts help 3.7 million people feel validated in their own experience or, if they aren’t also dealing with chronic conditions, hopefully, they’re learning a new perspective.

Gigi Robinson

Gigi has helped countless people with her advocacy for chronic illness. She’s even written a children’s book called “A Kid’s Book About Chronic Illness.” Gigi understands living with chronic illness, especially at a young age, since she was diagnosed with Ehlers-Danlos Syndrome at age 11. She also currently deals with endometriosis. Her 39K followers on Instagram love watching her beautiful life and entrepreneurship, but she shares much more about her daily experience with chronic illness, body confidence and mental health with her 142K on TikTok.

Rachel Hill

Rachel of The Invisible Hypothyroidism is an advocate and chronic illness influencer who talks all about the autoimmune disease, Hashimotos. Rachel shares her real and raw experience with Hashimotos, plus helps others understand the disease and what it’s like to live with chronic hypothyroidism. She advocates on her Instagram and has written four books, and teaches others with thyroid disease how to best advocate for themselves.

Zoe Mckenzie

Chronic illness influencer Zoe shares her experience with Lupus and how movement and exercise have transformed her life. She now helps others in similar situations do the same. With chronic illness, each day is different and finding the energy to work out isn’t always possible. Zoe shares gentle movement specifically for those with chronic illness. She has 31.6K followers on Instagram who love her advice and realistic expectations around being active.

Nicole Pedra

Nicole may be an actress, but she’s first and foremost a chronic illness advocate. Nicole has been living with Multiple Sclerosis since age 11. She has 25.2K followers on Instagram who are pulled to her authenticity around living with chronic illness.

Abbie

Endometriosis advocate Abbie shares her experience with chronic illness and three miscarriages on Instagram. Her truth helps countless others feel seen and heard with their endometriosis pain.

Mik Zazon

Mik is a TikToker with over 1 million followers who shares her real-life experience with chronic illness mixed in with her daily funny shenanigans. She’s open and honest and shares some of the hardest parts of endometriosis, IBS and even mental health and sensory issues. Her authenticity is refreshing in the TikTok space, especially for others living with chronic symptoms.

Lilly Downs

Lily shares her experience with gastroparesis and shares vlogs themed around a “Day in the Life of a Sick Kid.”  Lily has 55.8K followers on TikTok. She’s even started her own embroidery business called Sick Swag.

Summer Noel

Chronic illness influencer Summer has built up a following of 125.5K followers on TikTok. Summer deals with POTS, but she shares her life as a barista as well as her faith.

Jeannie

Jeannie of A Little About A Lot on TikTok shares her experience with chronic illness mixed in with a few of her other favorite topics. Jeannie lives with Tarlov Cyst Disease, Adhesive Arachnoiditis and Ehlers-Danlos Syndrome. She has a full chronic illness favorites section on her TikTok.